U.K.

OcuMel UK

OcuMel UK is a registered charity run by eye cancer patients and family members.  They provide support for anyone affected by eye cancer.  They aim to give clear and accurate information to help you make the life choices that are right for you. Their friendly staff and volunteers understand how isolating it can be when you or your loved one are diagnosed with a rare cancer.  They are there for you wherever you are in your eye cancer journey. They raise awareness of eye cancer amongst the UK public and work with medical professionals to increase their knowledge.

Website: https://www.ocumeluk.org

To join any of the OcuMelUK groups below as a member, registration is required. Message the site and the Administrator will respond with either a Personal Message or a friend request. https://www.ocumeluk.org/get-involved/become-a-member/

Facebook page: https://www.facebook.com/OcuMelUK/

Twitter: https://twitter.com/ocumeluk?lang=en

OcuMel UK Facebook Groups

OcuMelUK Patient Support: https://www.facebook.com/groups/272872522878571/
Support Group has 251 members
YOU MUST BE AN OM PATIENT TO JOIN THIS GROUP
Administrator: Jo Gumbs

OcuMel UK Family Support: https://www.facebook.com/groups/625633620842311/
Support Group has 116 members
Administrators: Nicky McDowell, Jo Gumbs, Jo Dallas

OcuMelUK Stage IV Support: https://www.facebook.com/groups/714591725229726
Support Group has 56 members
Administrator: Jo Gumbs

OcuMelUK bereaved Support: https://www.facebook.com/groups/1422561251363811/
Support Group for those who have lost loved ones to OM. 31 members
Administrators: Jo Gumbs and Stacey Fun-Magnet

OcuMelUK welfare Support: https://www.facebook.com/groups/841998822502837/
68 members
Administrator: Jo Gumbs

OcuMelUK awareness and fundraising group: https://www.facebook.com/groups/1731614263762572/
Project group (fundraising) with 144 Members
Administrator: Jo Gumbs, Jenni Walker and Claire Marie, Sonya D’Amaro, Tracey Davies and Tamara Rimmer

OcuMel UK Knowledge and Strategy Group: https://www.facebook.com/groups/694469807312873/
Strategy group discusses issues of treatment and funding
150 members
Administrators: Jo Gumbs 

OcuMel UK website: https://www.ocumeluk.org/get-involved/become-a-member/

To join any of the OcuMelUK groups below as a member, registration is required. Message the site and the Administrator will respond with either a Personal Message or a friend request.

OcuMel UK Scottish Members: https://www.facebook.com/groups/1439285443050091/
Support group to improve treatments in Scotland has 27 members
Administrator: Jenni Walker

UK online fora/ OM

Cancer Chat: https://www.cancerresearchuk.org/about-cancer/cancer-chat/thread/ocular-melanoma-1

MacMillan Forum: https://community.macmillan.org.uk/cancer_types/eye-cancer/f/58/t/71582

OcuMel UK Scottish Members: https://www.facebook.com/groups/1439285443050091/
Support group to improve treatments in Scotland has 27 members
Administrator: Jenni Walker

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